Netflix’s documentary shines a spotlight on 14-year-old Makayla Cain’s remarkable journey from silence to self-expression. Through her letterboard and the voice of Portia Cue, Makayla shares her profound story of living with Phelan-McDermid syndrome.
Breaking the Silence: A Rare Form of Autism
Born with Phelan-McDermid syndrome, Makayla faced unique challenges from birth. This rare condition, caused by a partially deleted chromosome, affects between two and ten people per million. For fourteen years, Makayla lived without the ability to communicate verbally with her family.
The introduction of a letterboard transformed Makayla’s life, opening new channels of communication. “It’s hard work, but it’s worth it,” Makayla expresses through her chosen voice-over artist, Portia Cue.
Her father, music producer Khari “Needlz” Cain, describes the family’s journey through years of frustration. The letterboard, along with instructor Roxy, brought tremendous change to their lives.
A Teenager’s Silent World
Despite her non-verbal nature, Makayla shares many interests with other teenagers. She deeply appreciates music and art, yet navigates a uniquely challenging path through life.
Makayla openly discusses her complicated feelings about living in silence. She acknowledges her occasional jealousy of others who speak easily, including her siblings without the condition.
Through her letterboard, she poses profound questions like, “How can I feel so much in silence?” Yet her story transcends these struggles, focusing on self-acceptance and education.
Beyond Words: A Mission of Understanding
The 24-minute documentary serves as a platform for Makayla’s larger mission. Her mother, Manana Cain, executive producer of the film, emphasizes their goal of inspiring families facing similar challenges.
Through her “Letter To Mom,” Makayla reveals her heightened senses and exceptional intelligence. She addresses the pain of being underestimated due to her non-verbal status.
Makayla emerges as a gifted poet, painting vivid pictures of her world through written words. Her story proves that meaningful communication extends far beyond spoken language.
